Okay ladies, what's done is done. Eleven day's ago I had my LSH ( Laparoscopy Subcervical Hysterectomy.) They took my ovaries, uterus and made a cervical cuff. I'm now part of another group Hystersisters. Highly recommend this online group once you have your Hysterectomy, very helpful. Not to mention the support you will need to walk you through a new page of your life.
The seven month's of Zoladex was worth it. My two large cyst fused by endometriosis shrunk. Plus, I feel this drug throwing me into menopause helped prepare me for what to expect after my hysterectomy. Thirty six year's old and menopausal, who joined the ranks of ladies who lost an organ due to this disease.
What was the findings? Well, my ovaries even on Zoladex grew more cyst. A huge fibroid in my uterus. Great news all tested negative for cancer. My Dr. Removed ovaries and uterus to decrease the chance of that turning to cancer. I was running a high risk due to family history. Well and the fact eventually one of those cyst would be cancer. He found more endo under my uterus so he did another ablation.
Okay, downside. I literally died because of endometriosis. ( as in I wouldn't have this surgery if I didn't have it.) Putting a warning out there to You. Know what drug's your body reacts too. I already knew I couldn't take narcotics for pain meds. Even have to have motion sickness patch and other med to stop me from getting violently ill from anaesthesia. Well under they found I had internal bleeding which they were not to concerned because it could have happened from tools going in. Anyways they found a lot of hematomas under my muscles. After surgery all I remember is whispering "cold and in pain." Then they said your going to feel a warm sensation We're giving you diluadid. This folks is a opioid. What I didn't know my body would react to it. Sure enough I flat lined then they brought me back. Didn't find all of it out until just yesterday at my post op visit. How so you might ask?
My mom and girlfriend were going to see me in recovery when they were pushed back saying give her 15-20min. To manage pain. Soon they saw me in my room. I remember being told to move to my bed then my mom asking how I feel. They said goodbye and left. Then I remember being told to sit up so they could strap a halter monitor to me and tubes in my nose so I could breathe. At midnight I came to. From then on I was in and out of consciousness. My mom walked in the morning and saw the monitor and oxygen tubes. She then saw on my board AHA diet. ( American Heart Association diet.) Mom began asking questions. See my whole family is in the medical family and my step dad and uncle are heart patients so she knew something was up. One nurse said, " Shouldn't we all be on the diet." Another my guardian angel as I called her said, " Don't worry mom I stayed with her past midnight and my shift to make sure she was okay." That women pushed me to rally bless her. Questions were evaded until I saw my Dr.
Am I scared now knowing yes, but I see it as endometriosis last hold. I gave my life for it and now have a new lease. No not every one will have this problem. Mine is bad genetics. My family makes poor drug addicts.lol. How do I feel sore, tired and learning my limits. Don't push yourself.
Do's : get up walk a little just like laparoscopy the co2 is nasty mistress you must expell.
Get a pillow to hold against your abdomen.
Rest! Don't be a superstar heal your insides are re adjusting.
Have a extra set of hand's to help. You can't drive for two week's or more depending on what you get done.
Ask for coalesce and drink water , be prepared for major constipation. This will pass.
Get a lot of hugs. You need lots of love at this time.
Warning: you get weepy uncontrollable crying. Depressed. Do not make any life changing decisions for awhile, let yourself settle, focus on healing. Your going to get nasty moody. Feel a loss but as I stood in the shower one day I smiled because it's over.
Next week the Zoladex will officially leave my body. I made it! Wipe brow. Now going to learn about hormones. Estridal 1mg is what they are saying for me because I'm young. We will see. I will blog some more in a few week's. Here is something for you there was a women ahead of me for surgery. She was in for her sixth robotic surgery due to Endo. Six! She wants a baby, I pray it work's. See we go through so much just to be a normal women. Hang in there you can do this.
Hoped this has helped.
Attached are pics of my recovery board and my healing incisions. A lot better than back in the day when they cut into your abdominal.
Mandi Endometriosis / Hysterectomy warrior.
